Busy, Busy, Busy

A sweet moment between sibs.

Our little girl is at home, doing fabulously, and has quite the two-weeks ahead of her. There will be LOTS of quality time with the family at home and we may even try to sneak in some non-peak hour, outdoor fun beyond the confines of our property line (Capital Wheel at the National Harbor, here we come?) A lot of time, however, will be spent with the team at Children's "really getting to know Jade inside and out" and making sure that her body is transplant ready, i.e. no infections or potential infections lurking ANYWHERE. That translates to about a dozen appointments and almost daily trips to the hospital. (Our normal 35-minute drive was about an hour and fifteen minutes, thanks to heavy rains and rush hour traffic this morning... but we jammed to Kidz Bop the whole ride, so no sweat.)

Still no success in finding an adult bone marrow donor match.  The outreach to the adult donors who are a potential 7/8 match for Jade has been wildly unsuccessful.  (Pick up your phones, people!) So at this point, Jade will likely be getting a stem cell transplant from an umbilical cord blood donation in early July.
We are truly thankful that this is even an option for Jade.  

Thank you for checking in on Jade, for continuing to get those cheek swabs in, and for your continued prayers and encouragement... (P.S. Jade & Co. is on Facebook now: www.facebook.com/superfriendsforjade. It may be easier to follow Jade there. :)

Now, let's see where we can pencil in some fun: 

Date: Monday, June 9^th     

TIME:  10:30AM                                                  Hem/Onc Clinic                 

TEST:  Follow-Up and Blood Work                        4th Floor East Tower

Date: Wednesday, June 11^th     

TIME:  8:30AM                                                  Dental Clinic                 

TEST:  Dentist Appointment                               First Floor Hospital Rm #1650

TIME:  5:00PM                                                  In-Home
TEST:  Follow-Up                                              Johns Hopkins Nursing

Date: Thursday, June 12^th 

TIME:    10:30AM                                               Cardiology Clinic

TEST:   ECHO/EKG and Cardiology Consult         3^rd floor Main tower

Date: Friday, June 13th

TIME:    8:30AM                                                 Radiology Department

TEST:  CT scans                                                2^nd floor Main building

TIME: 12:00PM                                                  Bone Marrow Transplant Clinic
TEST: Social Work Consult – Regina Tosca        4^th Floor East Tower

TIME: 1:00PM                                                   Bone Marrow Transplant Clinic

TEST: Blood work for BMT Testing                    4^th Floor East Tower

Date: Monday, June 16^th

TIME:  8:30AM                                                  HEM/ONC Clinic

TEST: Bone Marrow Aspiration                           4^th Floor East Tower
          Bone Marrow Biopsy
          Lumbar Puncture

Date: Tuesday, June 17^th

TIME:    10AM                                                    Radiology Department

TEST:  GFR                                                     2^nd floor Main building

TIME:    2:00PM                                                 Bone Marrow Transplant Clinic

TEST:   Child Life Consult                                  4^th floor East Tower

Date: Thursday, June 19^th 

TIME:    12:00 PM                                              Bone Marrow Transplant Clinic

TEST:   Consent conference                               4^th floor East Tower

TEST:   Blood Work