Jade literally did running laps around the unit when we returned -- high-fiving the nurses; questioning, with hand on hip, the art room's being closed due to a meeting; tackling her favorite male nurse; and recapping her time at home: I played hide and seek, I rode my bike, and my head got wet (baptism.)
Her primary physician had to catch up with her in the playroom -- and close the door so that she wouldn't run out during the brief physical exam. She was so happy, full of energy, and not about to stay in her room to take care of pesky little admissions details.
This round will be identical to the first, minus one chemotherapy agent. (She won't receive the daunorubicin this time. That's the one that can cause heart damage in the long-term.) For six days, this will be Jade's routine:
12am: vitals, steroid eye drops
3am: artificial tears
4am: vitals, blood draw for daily labs
6am: steroid eye drops
8am: oral meds
9am: artificial tears
12pm: vitals, steroid eye drops
2pm: 4 hour filgrastim infusion
3pm: artificial tears
4pm: oral meds
6pm: steroid eye drops
7pm: 30-min chemotherapy infusion
8pm: vitals, 3 hour chemotherapy infusion, artificial tears
9pm: artificial tears
Then we wait the 3-4 weeks that it typically takes for her immune system to recover, praying for no fevers or infections, for the chemo to keep doing its job and keep the leukemia away, for a bone marrow match. Have you signed up for the registry yet? Just curious. www.bethematch.org.
Thanks for your continued prayers for Jade's complete healing, for a match, for a cure.
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