This photo only captures a glimpse of the tomfoolery that was our home this weekend.
Over the past three days, the barrettes and clips that Jade used in her hair just a few months ago became part of a new "do" for Mommy. We have jumped on the bed, painted, baked (if crescent rolls count), read Lil Bill books and from My Book of Bible Stories, followed Jade's hip-shaking lead in a dance, watched movies, stuck and unstuck stickers, played video games, put puzzles together, took puzzles apart... and put them back together. Climbed up the stairs and scooted down on our bottoms. Told Jade to share with her brother. Told Lil Jay to share with his sister. Gotten stuck in Lil Jay's room (our doors expand in warm weather). Brought out the trusty air mattress so we could all sleep comfortably in the same room.
With the exception of Jade's taking her own blood pressure and temperature with her doctor kit (it's hard to go from having it taken every four hours to not at all), and our making sure she gets her oral meds (down to four this time), her IV med (just heparin), and central line dressing and cap change, it was almost like old times. A part of me really has already accepted the antibiotics, antifungals, etc. as part of our new normal. But I say almost because I know that I consciously appreciate these moments much more now and find myself running for a recorder when Jade is singing "tinkle tinkle little star," or a camera when Lil Jay and Jade are monkey- seeing and doing.
We will head back to the hospital on Tuesday for an out-patient check-up and possible bone marrow biopsy and spinal tap, which would officially be Day Zero of Round Three, if Jade's counts are high enough. But for now, we are enjoying every moment... and hoping we can keep up this momentum!
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