So, today wasn't a great day for Jade; she refused to open her eyes because they hurt, slept for the majority of the day with a cool washcloth across her eyes, and required a transfusion of B+ blood due to her low hemoglobin levels and uncharacteristic lack of energy. We're not certain what's going on with her eyes. Maybe it's something
as simple as springtime allergies? Or maybe the eye drops, which were
discontinued the standard 48 hours after her last chemo infusion, ended
too quickly for Jade? The doctors have reordered the eyedrops to see if
that helps. The screams from our room at the mere mention of eyedrops were a certain indicator that they just might not go over too well...
But, Jade did still manage to drink more than 30 ounces of fluids so she doesn't have to be tethered to IV fluids round-the-clock. And we kept the mood light and playful. I surprised Little Jay with an early pick-up from school. (What kid doesn't like being called to the office for early dismissal?) We returned just in time for Hospital Bingo. Grandma had just set up our Bingo cards and began marking them like we were in a Bingo Hall somewhere, unaware that the kid's protocol is one Bingo card at a time to be played consecutively, not concurrently. We got it together though -- with a lot of help and enthusiasm from Little Jay -- and squeezed out a win. Little Jay was super excited because he "never wins Bingo during indoor recess;" Jade was surprised to learn that she could win even in her sleep! We ended the day with a literal spin around the unit; Dad pushed Jade around the unit in an office chair -- closed eyes and all -- much to her delight.
Thanks for checking in on Jade and keeping her in your prayers.
Oh my, I cannot believe you are having to do this again. I have checked up regularly on Jade and I am so saddened that her AML has returned. I will pray for her and for the rest of your sweet family. Lots of love Jill (mom of Little Air Bear)
ReplyDeleteThanks, Jill. I can't believe we are hear again either. After more than a year of remission, I had really just begun to allow myself to worry a little less. Thank you for your prayers. I am still drawing a lot of encouragement from my faith and from your family's story -- Erin looks great!!
ReplyDeleteBest,
Taneika