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On Saturday, while Jade rode through the halls singing some of her faves, our good friends Michelle and Monica helped celebrate Little Jay's awesomeness (and straight A third quarter report card) with a night on the town. Red Robin and Sweet Frog, while definitely highlights of Lil Jay's "date," may have been eclipsed by a stop at Target. At the end of the night, he asked "Do I have a girlfriend, Mommy?"
On Sunday, we enjoyed a delicious meal prepared to Little Jay's specifications by the kids' Sunday School Teacher, Ms. Marsha. It was right on time too! Jade has lost a little over two pounds since her relapse. An appetite stimulant was added to her daily medications this weekend and we are hopeful that -- combined with good eating -- it will be enough to completely avoid talks of feeding tubes, etc.
Thank you all for your encouragement, support, and continued prayers for Jade's complete healing and for our family. A special thank you to Ms. Ebony, Rose Valley PTO, Ms. Michelle, Ms. Monica, and Ms. Marsha for "showing up" this weekend. We will beat this.
I'd read your original blog and had bookmarked it because that's what you do when your kid has the same thing. I never expected to click on it today on a whim and find a whole batch of new posts.
ReplyDeleteOur son is recovering from his BMT and it seems as though your treatment plan is remarkably similar to his: Four rounds of chemo followed by the BMT.
Anyways know that you're not alone, and thanks for sharing your journey with strangers like us. Onwards and upwards with those ANC's!
I never expected to really update the blog again; definitely not with these kinds of updates... really anxious about finding a suitable match and the actual transplant process, but hopeful. I'm continuously amazed by how resilient and strong these kids are... I wish your son and your family all the best!
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