So, I must confess. I was dozing off as I typed last night's entry... I'm not hoping for a repeat tonight.
It was another quiet day on 4 East, with the exception of the nurse misreading the administration guidelines of Jade's antibiotic. (Should be one hour before the chemo, not...) This is why we're so tired... can't sleep, even when all appears calm!
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| Jade clearly excited by the balloon delivery! |
Jade's high spirits continue to prevail. Our nurse-practitioner told us today that she loves that we get Jade dressed every day; that it helps everyone, including staff, feel better. I just couldn't imagine her being in pjs or a gown every day. That would be depressing for us.
We took a walk, visited the play room, teen room, and art room all before noon. Jade's physical therapy visits resumed today. Joint pain was one of her presenting symptoms, add to that the fact that joint pain is a possible side effect of the antibiotic she's on, and you get physical therapy 3 times a week. Jade enjoys it though; the physical therapist she had today was great. We also had a surprise delivery of balloons (I tried to capture Jade's "ut, ut, and away" on video, but was too slow) and a visit from Ms. Jill from my office. Jade was so sweet, she threw her little arms wide open to give her a hug when she came in. And Ms. Jill was such a sport, getting adorned with stickers, having her pockets searched, and translating Spanish videos Jade found on Youtube.
We took a walk, visited the play room, teen room, and art room all before noon. Jade's physical therapy visits resumed today. Joint pain was one of her presenting symptoms, add to that the fact that joint pain is a possible side effect of the antibiotic she's on, and you get physical therapy 3 times a week. Jade enjoys it though; the physical therapist she had today was great. We also had a surprise delivery of balloons (I tried to capture Jade's "ut, ut, and away" on video, but was too slow) and a visit from Ms. Jill from my office. Jade was so sweet, she threw her little arms wide open to give her a hug when she came in. And Ms. Jill was such a sport, getting adorned with stickers, having her pockets searched, and translating Spanish videos Jade found on Youtube.
Papa Frankie is back in town and spent the day with us as well, so Jade had plenty of opportunities to disturb his slumber. We ended the day with a little vomit; not sure if it was the medicine, the food, or her feeding herself. I got her bathed (no small feat with her central line, which we avoid getting wet to minimize the number of dressing changes and the opportunities to expose the site to germs)... and then she was back to her old tricks. :)
Less than 12 hours from now, Jade will be finished receiving the chemotherapy drugs for this round. The watchful wait then begins as we monitor her counts falling all the way to zero, pray and guard against any infection or illness, and then recovery. We anticipate at least another 20 days in the hospital before Jade can have a break to go home for a few days. Please keep the prayers and positive energy coming!
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